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CPUShack
Joined: 16 Jun 2003
Posts: 34258
Location: State of Jefferson, USA
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 Posted: Sun Aug 18, 2024 12:52 am Post subject: |
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Just an update. We continue to be in Portland (OHSU Hospital) with baby.
She is doing pretty good, Heart has some differences but nothing serious. Just working on her learning to eat enough to go home with us.
The root cause is likely a data copy error, one of her chromosomes' is missing ~12mb of data (about the size of a Windows 3.11 WFW install) in an area that is responsible for heart development and some other things.
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isa-d
Joined: 16 Aug 2006
Posts: 2984
Location: Italy
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| Posted: Sun Aug 18, 2024 7:57 am Post subject: |
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| take your time and everything going well |
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Vegeta
Joined: 13 Apr 2013
Posts: 7049
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| Posted: Sun Aug 18, 2024 8:57 am Post subject: |
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I believe that everything will be fine!
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H3nrik V!
Joined: 15 Apr 2014
Posts: 1246
Location: Denmark
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| Posted: Mon Aug 19, 2024 12:04 am Post subject: |
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All the best to baby Culver!
(Do we have a name yet?)  |
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CPUShack
Joined: 16 Jun 2003
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Location: State of Jefferson, USA
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Marcin
Joined: 02 Jan 2005
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Location: Poland
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alexino2
Joined: 13 Mar 2017
Posts: 355
Location: France
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| Posted: Mon Aug 19, 2024 4:08 am Post subject: |
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| She'll have a beautiful life. All the bests to Hosanna ! |
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feipoa
Joined: 08 Mar 2011
Posts: 553
Location: Canada
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| Posted: Wed Aug 21, 2024 9:06 pm Post subject: |
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Just read through this...
Genetic mutations and other abnormal issues are much more common with older parents. I always wished I had kids much sooner in life for this reason as well as overall energy level to deal with children.
Your time in hospital makes the 6 days in hospital for each of my 3 kids feel like a holiday. For each birth, I remember feeling very relieved to get away from therel. I cannot imagine what 7 or 8 weeks would feel like for you. After just a few days, I was getting horrifically antsy. This was before I had a computer phone. How are you coping with this physically and mentally?
Have you been in hospital this whole time, or do you have relatives, friends, or a motel that you can stay at? Sleeping in the hospital next to baby is difficult because the nurses or doctors come in every hour or two to wake you up. I remember feeling hung over all the time because of this.
Hope you get home soon. It will feel like a 5-star hotel when you do.
Be well...
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Williac
Joined: 25 Feb 2022
Posts: 933
Location: Canada
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| Posted: Wed Aug 21, 2024 10:59 pm Post subject: |
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I will second what feipoa said. Having kids later is sometimes the only option, but creating something(s) with extra battery life when yours is lower can be difficult to manage.
John, I hope you, Jessica, and Hosanna are getting the rest you need during this challenging time. Best wishes to the three of you! |
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lazyfortress
Joined: 16 Sep 2018
Posts: 279
Location: Maryland, USA
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| Posted: Thu Aug 22, 2024 12:54 am Post subject: |
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Congratulations on the child, I wish you all the best; God bless your family and yourself.
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CPUShack
Joined: 16 Jun 2003
Posts: 34258
Location: State of Jefferson, USA
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| Posted: Thu Aug 22, 2024 10:48 am Post subject: |
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| feipoa wrote: | Just read through this...
Genetic mutations and other abnormal issues are much more common with older parents. I always wished I had kids much sooner in life for this reason as well as overall energy level to deal with children.
Your time in hospital makes the 6 days in hospital for each of my 3 kids feel like a holiday. For each birth, I remember feeling very relieved to get away from therel. I cannot imagine what 7 or 8 weeks would feel like for you. After just a few days, I was getting horrifically antsy. This was before I had a computer phone. How are you coping with this physically and mentally?
Have you been in hospital this whole time, or do you have relatives, friends, or a motel that you can stay at? Sleeping in the hospital next to baby is difficult because the nurses or doctors come in every hour or two to wake you up. I remember feeling hung over all the time because of this.
Hope you get home soon. It will feel like a 5-star hotel when you do.
Be well... |
yah a bit crazy, we're checking on the genetics, its most likely hereditary vs age related (my dad has similar)
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Neology
Joined: 25 May 2011
Posts: 2412
Location: VIC, AU
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| Posted: Thu Aug 29, 2024 8:38 am Post subject: |
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| CPUShack wrote: | Just an update. We continue to be in Portland (OHSU Hospital) with baby.
She is doing pretty good, Heart has some differences but nothing serious. Just working on her learning to eat enough to go home with us.
The root cause is likely a data copy error, one of her chromosomes' is missing ~12mb of data (about the size of a Windows 3.11 WFW install) in an area that is responsible for heart development and some other things. |
All the best with baby and family~
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CPUShack
Joined: 16 Jun 2003
Posts: 34258
Location: State of Jefferson, USA
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| Posted: Thu Aug 29, 2024 1:15 pm Post subject: |
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We are on the way home now, stopping at our parents as we go, so back to the Shack on Friday
a pile of packages awaits
Than you for all your help and support, its been a long process
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rjluna2
Joined: 27 Oct 2014
Posts: 1302
Location: Hiram, GA, USA
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| Posted: Thu Aug 29, 2024 2:03 pm Post subject: |
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Enjoy with brand new baby in your family safely at home  |
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Bator
Joined: 28 Oct 2013
Posts: 1285
Location: Russia / Yakutia & Siberia
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| Posted: Thu Aug 29, 2024 2:42 pm Post subject: |
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| CPUShack wrote: | | We are on the way home now, stopping at our parents as we go, so back to the Shack on Friday |
This is good news. Finally, the youngest heroine of your life's journeys will see her home!
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